@ilovenoy thats how I lost my kidneys also by lupus. I had my first transplant in 1991 when I was 18 and it lasted 14 and a half years. I had my second one in 2006 and am doing very well but has anyone had any problems with prograf giving them panic attacks.
@ilovenoy so how r u feeling now. and what medicines u r taking now and how much, Have you done Anti ds DN, after kidney transplant.
Is your SLE is in control now?.
Very good video! I am also kidney transplant but I’m a total of 48 pills a day for varies things due to issues from kidney failure and the kidney transplant I have a total of 15 bottles of pills. Prograf I am taking 11 pills total every day and I’m on Myfortic 4 pills total every day and 4 mg grams of steroids every day. My transplant was in 08 but still my pull dosage is high my creatine is 1.4 sometimes it is 1.3. Be blessed and take care.
Bringing back old memories for me .. I was transplanted 21 years ago and stil going strong! Google: Transplant To Handplant fo more info. God Bless You.
I got my transplant in 2009 and I take more medication than that shown. Because I have Lupus also. Those Anti-Rejection medicine is so expensive, but I rather pay for that than being on dialysis any day.
I should point out that this was _right_ after the transplant and that after a year I was on 4 pills in the morning and 4 in the evening AND that the dosage was much lower.
i am a fourth semester nursing student and we r to discuss transplant this evening in class…my heart goes out to all of you who commented, and to the genteleman who shared this video (it’s part of our lecture a Sacramento City College). I would just like to say to “NickJonasMyHotLoVer” stay ebullient and don’t let those feelings get you down. I am a JW, and I know that Jehovah will soon take away ALL sickness and death, Christ died for us to have the same privelege Adam and Eve used to have
I would leave out the stool softener if I were you, it can be very dangerous. There’s a video on my channel showing the negative repercussions of stool softener, check it out.
I remember this… I had a kidney transplant in 2001, then a cancer in 2007. Chemotherapy was used for cancer, forcing me to stop taking my kidney rejection medicine. I no longer take any sort of anti-rejection medicine, and my kidney has been healthier than it has ever been post cancer treatment.
Doctors now want me to go back on medicine, however, but I know my body and kidney are healthier without medicine. The side effects of long term immunosupression scare me
u take lot of madicine man…. i had my transplant this yr in feb. and i m on prograf, myfortic, prednisone and pantaprezol….
its been over six months for me….. but still now and then i feel pain in my stomach where the new kidney is….. is it normal?
i m really worried abt getting an infection….. coz of these immonsupresants ….. now its swine flu….. god i don t wanna pick up no nasty sheet nomore….
Your medicine should taper off after 6-9 months out until you reach a maintenance dose. As your dosage comes down, so will your Creatinine because the immunosuppressants are nephrotoxic.
i had my kidney transplant last july 29 2009,im in the hospital for almost 3 weeks because my creatinine is always in 1.7 to 1.9,still im not sure if that’s ok but i’d rather take a lots a medicine than dialysis,anyways hope my new kidney will work well,thanx!
anti rejection drugs here in our country philippines…is very expensive…most dialysis patients here would rather choose not to go on transplant operation because of the high cost of these medicines…..i take neoral 100mg…imuran replacement for cell cept , prednisone and vascor for my hypertension….i im on my 10th year now….GODis really great..praises back to HIM..i am 49 now…and enjoying life.
I was first on dialysis when I was 16. Then Kidney transplant. Then dialysis again when I was 27. Peritoneal Dialysis and then Hemo Dialysis .. this time around dialysis total for 6 1/2 years then kidney transplant in 2007! You are right, I counted 30 pills I took a day right after transplant (I am rounding off because I don’t remember exactly anymore). Still take quite a bit and found out I am allergic to Tacrolimus!
I have 2 transpIants. I was on dialysis for 5 years before i got my 1st transplant at
12, and i got my 2nd one when i was 15. I’m 18 now. and i still have both of them.
I had a kidney transplant 2 years ago, I was in the hospital for 5 days after. I was up and doing semi-normal things in about 1 week and then perfectly normal within 2-3 weeks. I was 21 when I had my surgery. Hope this helps!
I’ve dropped some of the pills and will drop a few more in 6 months. I’m thinking about switching from Tacrolimus to Cyclosporine (even though I’ll be taking a small dose of prednisone as well).
I’m really sorry that you had to have a kidney transplant so young but I’m also glad that you’re doing so well now.
2 comments on this topic
7. December - 9:14 pm
@ilovenoy thats how I lost my kidneys also by lupus. I had my first transplant in 1991 when I was 18 and it lasted 14 and a half years. I had my second one in 2006 and am doing very well but has anyone had any problems with prograf giving them panic attacks.
7. December - 9:14 pm
@ilovenoy so how r u feeling now. and what medicines u r taking now and how much, Have you done Anti ds DN, after kidney transplant.
Is your SLE is in control now?.
7. December - 9:14 pm
Very good video! I am also kidney transplant but I’m a total of 48 pills a day for varies things due to issues from kidney failure and the kidney transplant I have a total of 15 bottles of pills. Prograf I am taking 11 pills total every day and I’m on Myfortic 4 pills total every day and 4 mg grams of steroids every day. My transplant was in 08 but still my pull dosage is high my creatine is 1.4 sometimes it is 1.3. Be blessed and take care.
7. December - 9:14 pm
Seeing this video reminds me how lucky i am to have an identical twin brother. Thanks to him I don’t have to take any of the drugs.
7. December - 9:14 pm
Bringing back old memories for me .. I was transplanted 21 years ago and stil going strong! Google: Transplant To Handplant fo more info. God Bless You.
7. December - 9:14 pm
Good video. I’m on tacrolimus and prednisolone as well.
7. December - 9:14 pm
@naphoy21 That is a very good level, your luck.
7. December - 9:14 pm
I got my transplant in 2009 and I take more medication than that shown. Because I have Lupus also. Those Anti-Rejection medicine is so expensive, but I rather pay for that than being on dialysis any day.
7. December - 9:14 pm
I should point out that this was _right_ after the transplant and that after a year I was on 4 pills in the morning and 4 in the evening AND that the dosage was much lower.
7. December - 9:14 pm
if that’s not a case for socialized health care i don’t know what is.
7. December - 9:14 pm
i am a fourth semester nursing student and we r to discuss transplant this evening in class…my heart goes out to all of you who commented, and to the genteleman who shared this video (it’s part of our lecture a Sacramento City College). I would just like to say to “NickJonasMyHotLoVer” stay ebullient and don’t let those feelings get you down. I am a JW, and I know that Jehovah will soon take away ALL sickness and death, Christ died for us to have the same privelege Adam and Eve used to have
7. December - 9:14 pm
I would leave out the stool softener if I were you, it can be very dangerous. There’s a video on my channel showing the negative repercussions of stool softener, check it out.
7. December - 9:14 pm
i have had a kidney transplant for 5 years now and now only take cellcept, prograph and asprin as well…
7. December - 9:14 pm
It has been over a year and my medicine dosage is much lower now. I require 4 pills in the morning and the evening.
As for why it happened to you: you did nothing wrong, that’s just the way things are sometimes.
7. December - 9:14 pm
OMG don’t tell me i need 2 take that much medecine :S
i already taking 100 medecine in 1 week ;:/
Pleaseee why does this happen 2 me
7. December - 9:14 pm
I remember this… I had a kidney transplant in 2001, then a cancer in 2007. Chemotherapy was used for cancer, forcing me to stop taking my kidney rejection medicine. I no longer take any sort of anti-rejection medicine, and my kidney has been healthier than it has ever been post cancer treatment.
Doctors now want me to go back on medicine, however, but I know my body and kidney are healthier without medicine. The side effects of long term immunosupression scare me
7. December - 9:14 pm
good tip with the tape. I hope to get a kidney from dad next year, On “D” for a 12months now, HD then PD.
7. December - 9:14 pm
u take lot of madicine man…. i had my transplant this yr in feb. and i m on prograf, myfortic, prednisone and pantaprezol….
its been over six months for me….. but still now and then i feel pain in my stomach where the new kidney is….. is it normal?
i m really worried abt getting an infection….. coz of these immonsupresants ….. now its swine flu….. god i don t wanna pick up no nasty sheet nomore….
7. December - 9:14 pm
Congratulations on the new kidney Naphoy21.
Your medicine should taper off after 6-9 months out until you reach a maintenance dose. As your dosage comes down, so will your Creatinine because the immunosuppressants are nephrotoxic.
7. December - 9:14 pm
i had my kidney transplant last july 29 2009,im in the hospital for almost 3 weeks because my creatinine is always in 1.7 to 1.9,still im not sure if that’s ok but i’d rather take a lots a medicine than dialysis,anyways hope my new kidney will work well,thanx!
7. December - 9:14 pm
anti rejection drugs here in our country philippines…is very expensive…most dialysis patients here would rather choose not to go on transplant operation because of the high cost of these medicines…..i take neoral 100mg…imuran replacement for cell cept , prednisone and vascor for my hypertension….i im on my 10th year now….GODis really great..praises back to HIM..i am 49 now…and enjoying life.
7. December - 9:14 pm
I was first on dialysis when I was 16. Then Kidney transplant. Then dialysis again when I was 27. Peritoneal Dialysis and then Hemo Dialysis .. this time around dialysis total for 6 1/2 years then kidney transplant in 2007! You are right, I counted 30 pills I took a day right after transplant (I am rounding off because I don’t remember exactly anymore). Still take quite a bit and found out I am allergic to Tacrolimus!
7. December - 9:14 pm
I have 2 transpIants. I was on dialysis for 5 years before i got my 1st transplant at
12, and i got my 2nd one when i was 15. I’m 18 now. and i still have both of them.
7. December - 9:14 pm
I had a kidney transplant 2 years ago, I was in the hospital for 5 days after. I was up and doing semi-normal things in about 1 week and then perfectly normal within 2-3 weeks. I was 21 when I had my surgery. Hope this helps!
7. December - 9:14 pm
I’ve dropped some of the pills and will drop a few more in 6 months. I’m thinking about switching from Tacrolimus to Cyclosporine (even though I’ll be taking a small dose of prednisone as well).
I’m really sorry that you had to have a kidney transplant so young but I’m also glad that you’re doing so well now.
Good luck and good health.